Seeley, Joanna2025-02-202025-02-202024-12https://unbscholar.lib.unb.ca/handle/1882/38257Information sharing between different interoperable health databases is called health information exchange (HIE). Although the HIE of personal health information (PHI) can improve patient safety for Canadians, some provinces do not disclose PHI about patient safety incidents with federal and pan-Canadian patient safety surveillance systems. A frequently cited barrier to HIE by healthcare organizations is patients’ and families’ concerns for their privacy. This study, guided by qualitative descriptive design, explored patients’ and families’ perceptions of privacy and the secondary use of PHI collected, used, disclosed, and retained on patient safety events. Participants identified privacy criteria, conditions for the access of PHI, types of data for HIE, and the purpose of HIE. There is a significant opportunity for data custodians to use the research findings to create a patient-centric framework for the HIE of PHI.xi, 113electronicenhttp://purl.org/coar/access_right/c_f1cfMEDICINE::Social medicine::Public health medicine research areas::Public health scienceINTERDISCIPLINARY RESEARCH AREAS::Health and medical services in societySOCIAL SCIENCES::Statistics, computer and systems science::Informatics, computer and systems science::Databasesmaster thesisBalcolm, SarahDurepos, PamInterdisciplinary Studies