Patients’ and families’ perceptions of privacy of health information and data sharing in New Brunswick

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dc.contributor.advisorBalcolm, Sarah
dc.contributor.advisorDurepos, Pam
dc.contributor.authorSeeley, Joanna
dc.date.accessioned2025-02-20T15:52:22Z
dc.date.available2025-02-20T15:52:22Z
dc.date.issued2024-12
dc.description.abstractInformation sharing between different interoperable health databases is called health information exchange (HIE). Although the HIE of personal health information (PHI) can improve patient safety for Canadians, some provinces do not disclose PHI about patient safety incidents with federal and pan-Canadian patient safety surveillance systems. A frequently cited barrier to HIE by healthcare organizations is patients’ and families’ concerns for their privacy. This study, guided by qualitative descriptive design, explored patients’ and families’ perceptions of privacy and the secondary use of PHI collected, used, disclosed, and retained on patient safety events. Participants identified privacy criteria, conditions for the access of PHI, types of data for HIE, and the purpose of HIE. There is a significant opportunity for data custodians to use the research findings to create a patient-centric framework for the HIE of PHI.
dc.description.copyright© Joanna Seeley, 2025
dc.format.extentxi, 113
dc.format.mediumelectronic
dc.identifier.urihttps://unbscholar.lib.unb.ca/handle/1882/38257
dc.language.isoen
dc.publisherUniversity of New Brunswick
dc.rightshttp://purl.org/coar/access_right/c_f1cf
dc.subjectMEDICINE::Social medicine::Public health medicine research areas::Public health science
dc.subjectINTERDISCIPLINARY RESEARCH AREAS::Health and medical services in society
dc.subjectSOCIAL SCIENCES::Statistics, computer and systems science::Informatics, computer and systems science::Databases
dc.subject.disciplineInterdisciplinary Studies
dc.titlePatients’ and families’ perceptions of privacy of health information and data sharing in New Brunswick
dc.typemaster thesis
oaire.license.conditionother
thesis.degree.disciplineInterdisciplinary Studies
thesis.degree.grantorUniversity of New Brunswick
thesis.degree.levelmasters
thesis.degree.nameM.A.H.S.R.

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